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Familial Dysautonomia Hope Foundation

 

Privacy Policy and Terms of Use

Disclosure
Familial Dysautonomia Hope (FD Hope) does not disclose, give, sell or transfer any personal information about our visitors, unless required for law enforcement or statute. This Web site provides links to external Web sites maintained by individuals or organizations external to FD Hope. Once you access information that links you to another Web site, you are subject to the privacy policy of the Web site containing the information you have linked to.

Security
Our Web site's ecommerce system uses SSL encryption to protect sensitive data transmissions from your computer to our Web site.

TERMS AND CONDITIONS OF USE

Restrictions on Use of Our Online Materials
All materials contained in the FD Hope Web site (“Online Material”) is the copyrighted property of FD Hope unless otherwise designated as belonging to a third party. All trademarks, service marks, and trade names are proprietary to FD Hope. No Online Material from our Web site may be copied, reproduced, republished, uploaded, posted, transmitted, or distributed in any way, except that you may download one copy of the materials on any single computer for your personal, noncommercial home use only, provided that you 1) retain all copyright, trademark and propriety notices, 2) you make no modifications to the materials, 3) you do not use the materials in a manner that suggests an association with any of our services, events or brands, and 4) you do not download quantities of materials to a database, server, or personal computer for reuse for commercial purposes. You may not, however, copy, reproduce, republish, upload, post, transmit or distribute our Online Material in any way or for any other purpose unless you get our written permission first. Neither may you add, delete, distort or misrepresent any content on the FD Hope Web site. Any attempts to modify any Online Material, or to defeat or circumvent our security features is prohibited.

Everything you download, all files, all images, and all data accompanying it, is considered licensed to you by FD Hope for your personal, non-commercial home use only. We do not transfer title of the Online Material to you. That means that we retain full and complete title to the Online Material and to all of the associated intellectual-property rights. You're not allowed to redistribute or sell the material or to reverse-engineer, disassemble or otherwise convert it to any other form that people can use.

Medical Disclaimer
Information accessible on this site is not intended to substitute for professional medical advice and information. Information provided is general in nature and may be helpful to some people but not others, depending upon their personal medical needs. This is why you should always consult with your personal physician prior to changing or undertaking new or existing treatments, or following advice designed for general audiences only. Your physician is typically best able to evaluate whether or not a specific health suggestion or potential course of treatment is best for you or your child. Never disregard professional medical advice or delay to seek it because of something you may have read on this site.

Limitation of Liability
FD HOPE WILL NOT BE LIABLE FOR ANY DAMAGES OR INJURY THAT ACCOMPANY OR RESULT FROM YOUR USE OF ITS WEB SITE.

THESE INCLUDE (BUT ARE NOT LIMITED TO) DAMAGES OR INJURY CAUSED BY ANY:

  • USE OF (OR INABILITY TO USE) THE SITE

  • USE OF (OR INABILITY TO USE) ANY SITE TO WHICH YOU HYPERLINK FROM OUR SITE

  • FAILURE OF OUR SITE TO PERFORM IN THE MANNER YOU EXPECTED OR DESIRED

  • ERROR ON OUR SITE

  • OMISSION ON OUR SITE

  • INTERRUPTION OF AVAILABILITY OF OUR SITE

  • DEFECT ON OUR SITE

  • DELAY IN OPERATION OR TRANSMISSION OF OUR SITE

  • COMPUTER VIRUS OR LINE FAILURE

  • PLEASE NOTE THAT WE ARE NOT LIABLE FOR ANY DAMAGES, INCLUDING:

  • DAMAGES INTENDED TO COMPENSATE SOMEONE DIRECTLY FOR A LOSS OR INJURY

  • DAMAGES REASONABLY EXPECTED TO RESULT FROM A LOSS OR INJURY (KNOWN IN LEGAL TERMS AS "CONSEQUENTIAL DAMAGES.")

  • OTHER MISCELLANEOUS DAMAGES AND EXPENSES RESULTING DIRECTLY FROM A LOSS OR INJURY (KNOWN IN LEGAL TERMS AS "INCIDENTAL DAMAGES.")

WE ARE NOT LIABLE EVEN IF WE'VE BEEN NEGLIGENT OR IF OUR AUTHORIZED REPRESENTATIVE HAS BEEN ADVISED OF THE POSSIBILITY OF SUCH DAMAGES OR BOTH.

EXCEPTION: CERTAIN STATE LAWS MAY NOT ALLOW US TO LIMIT OR EXCLUDE LIABILITY FOR THESE "INCIDENTAL" OR "CONSEQUENTIAL" DAMAGES. IF YOU LIVE IN ONE OF THOSE STATES, THE ABOVE LIMITATION OBVIOUSLY WOULD NOT APPLY WHICH WOULD MEAN THAT YOU MIGHT HAVE THE RIGHT TO RECOVER THESE TYPES OF DAMAGES.

HOWEVER, IN ANY EVENT, OUR LIABILITY TO YOU FOR ALL LOSSES, DAMAGES, INJURIES, AND CLAIMS OF ANY AND EVERY KIND (WHETHER THE DAMAGES ARE CLAIMED UNDER THE TERMS OF A CONTRACT, OR CLAIMED TO BE CAUSED BY NEGLIGENCE OR OTHER WRONGFUL CONDUCT, OR THEY'RE CLAIMED UNDER ANY OTHER LEGAL THEORY) WILL NOT BE GREATER THAN THE AMOUNT YOU PAID TO ACCESS OUR SITE.

Links to Other Sites
FD Hope sometimes provide referrals to and links to other World Wide Web sites from our site. Such a link should not be seen as an endorsement, approval or agreement with any information or resources offered at sites you can access through our site. If in doubt, always check the Uniform Resource Locator (URL) address provided in your WWW browser to see if you are still in our site or have moved to another site. FD Hope is not responsible for the content or practices of third party sites that may be linked to our site. When FD Hope provides links or references to other Web sites, no inference or assumption should be made and no representation should be inferred that FD Hope is connected with, operates or controls these Web sites. Any approved link must not represent in any way, either explicitly or by implication, that you have received the endorsement, sponsorship or support of our site or endorsement, sponsorship or support of FD Hope, including its respective employees, agents or directors.

Termination of This Agreement
This agreement is effective until terminated by either party. You may terminate this agreement at any time, by destroying all materials obtained from the FD Hope Web site, along with all related documentation and all copies. FD Hope may terminate this agreement at any time and without notice to you, if, in its sole judgment, you breach any term or condition of this agreement. Upon termination, you must destroy all materials. In addition, by providing material on our Web site, we do not in any way promise that the materials will remain available to you. FD Hope is entitled to terminate all or any part of any of its Web site without notice to you.

Jurisdiction and Other Points to Consider

Unless otherwise specified, the Online Materials on our site is presented to provide information about the resources of FD Hope. FD Hope was organized under the laws of Illinois, in the United States of America. If you use our site from locations outside of the United States, you are responsible for compliance with any applicable local laws. These Terms of Use, and the agreement they create, shall be governed by and interpreted according to the laws of the State of Illinois (without applying the state's conflict-of-law principles.) If any provision of this agreement is unlawful, void or unenforceable, it will not affect the validity and enforceability of any remaining provisions. FD Hope may modify these Terms of Use, and the agreement they create, at any time, simply by updating this posting and without notice to you. This is the ENTIRE agreement regarding all the matters that have been discussed.

 

CONTACT INFORMATION:

FD Hope

110 Deerwood Court

Chapel Hill, NC 27517

Phone: 828.238.3149

info@fdhope.org

We reserve the right to make any modifications that we deem necessary at any time. Please continue to check these terms to see what those changes may be. Your continued use of the FD Hope Web site means that you accept those changes. These Terms of Use are effective as of December 29, 2005.

 

 

 

 

 

 

 

 

Copyright © 2001 Familial Dysautonomia Hope. All Rights Reserved.

Privacy Policy/Terms of Use