Twelve
year old Rachel Littman is like most girls her age.
She loves art, television, and collecting just about
anything, but most especially, teddy bears. She even
loves school and is looking forward to middle
school. Rachel was born just 6 minutes ahead of her
fraternal twin sister, Eva, on December 9, 1992.
Rachel was born with FD. Eva was not. Rachel was
diagnosed with FD at three months of age. Physical,
occupational and speech therapies were started at 11
months and she continues to receive all three today.
When she was 5 years old, she began eating solid
food and now eats two meals day, plus gastrostomy
tube feedings via a nighttime pump. At school she is
a successful student, receiving assistance for
learning disabilities in a mainstream environment.
There are many things that make Rachel unique.
Recently she received two awards: her school's
Courage Award for an essay on why children should
take care of their health, and Best Safety Patrol.
She is a social butterfly admired by friends who
marvel at her upbeat attitude, sense of humor, and
wit. Her parents are constantly amazed at the
positive attitude with which she faces life's
challenges. Despite her physical difficulties,
Rachel perseveres. She worked hard to learn to play
golf and now enjoys regular games with her parents
and her sister.
Rachel loves to travel, and has traveled broadly,
visiting Maine, Wyoming, New York, Michigan,
Germany, Belgium, and the United Kingdom. Recently,
her love of travel helped decide the location of an
very important event in her future. In December she
will celebrate her Bat Mitzvah with her twin sister,
mother and grandmother on Massada, in Israel.
Massada is the symbol of Jewish courage and
defiance. It is a fitting site for Rachel Littman to
be welcomed into adulthood.