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Familial Dysautonomia (FD) is a devastating condition affecting children worldwide.

 

A miracle is unfolding ... be a part of it.

 

With your ongoing support, FD may no longer be a fatal disease.

 

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Bar and Bat Mitzvah Gifts Donated to FD Hope

If you would like to help FD Hope in its fundraising, there are some easy ways to do this that don't require a lot of extra work. One approach followed by several families is to use a bar or bat mitzvah event. Some have asked everyone invited make a donation in lieu of a gift. Others have pledged a portion of their bar or bat mitzvah cash gifts to FD Hope. Either is a wonderful way for families to raise awareness of FD and use the good will of the event to help raise the money that will save children's lives. Bar and bat mitzvah events can help draw a lot of attention to FD and raise money for research and treatment, as can any other life cycle celebration where people customarily give gifts is equally suited to the task. Got a 50th birthday party coming up? A 25th wedding anniversary? An open house for the new home you just moved into? Any of these events, and others, can become fun and easy ways to spread the word and help us to raise funds. At the same time, you're performing an act of tzedakah that will help the kids with FD. If you'd like more information on how to participate, please contact our office. We can provide donation envelopes, and literature if you'd like to distribute it at the event.

 

Bar Mitzvah Heroes

 

Spencer Waldron Fields of Pittsburgh, PA celebrated his bar mitzvah on January 18 surrounded by friends and family. At the end of Spence's personal speech, he announced that he was donating ten percent of his monetary gifts to FD Hope for research "to help find a cure for his North Carolina's cousins' life-threatening disease, Familial Dysautonomia."

 

Ezra Freedman-Harvey of Seal Beach, CA celebrated his bar mitzvah on May 24. He asked everyone invited to his service to make a donation to FD Hope. Ezra's bar mitzvah celebrated not only his coming of age but his commitment to helping all his cousins with FD.

 

 

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