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Meet Some of the Children and Families

 

 

     
       
 

Each of these children and their families, as well as the FD research team and many others, must face

each and every day with courage and hope that one day a cure for Familial Dysautonomia will be found. The children, with their smiles and positive attitudes, serve as a glowing reminder that although we all live with various challenges and limitations, they shouldn't stop us from living our lives to the fullest.

Read the stories of the children, families and researchers by clicking on their names.

Meet Rachel Littman

"She is a social butterfly admired by friends who marvel at her upbeat attitude, sense of humor, and wit."

Meet Evan White

"Evan lives each day in the shadow of this life-threatening disease, but that doesn't stop him from wanting to roller skate and play the guitar."

 

Meet Ezra Freedman-Harvey

"FD Hope-funded research has helped Ezra to keep reaching milestones and has given him ways to live out his dreams."

     
   

 

 
   

 

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